Hello anyone who would read this, I don't normally post anything other than photography on this blog (with rare exception) but I really want to ask you to help out someone I know with a rare form of cancer.
Some of you may know I work a day job at a Johnson and Johnson company. One of the services I was working with, on my project, was run by a very nice fellow named Craig DeHond. As the inevitable bugs were being worked out between our systems I came to learn that his wife, Caroline, had cancer. The type of cancer was the real shocking part to me.
Click here for the article about the DeHonds in the Penfield NY paper, The Democrat and Chronicle.
- There are only about 300 known cases of Clear Cell Sarcoma in the past 40 years.
- Only about 50% of patients live more than 5 years.
- Carolina has a 10% chance of seeing her daughters graduate from high school.
- Clear Cell Sarcoma has a very high recurrence rate.
- After Clear Cell Sarcoma spreads, the prognosis is death.
This cancer is treated by removing it surgically, as chemo and radiation therapies have not been effective. What this means is that if the cancer is not fully removed during the initial surgery, the patients prognosis for survival is bad, very bad! This extremely rare cancer has only been diagnosed about 300 times in the past 40 years. Up to this point, there have not been any successful treatment protocols developed to combat the cancer after it spreads.
After reading this and reading that there is no proven treatment and experimental treatments aren't being covered by insurance I immediately asked where I could make a donation.
To quote the "Democrat and Chronicle"
"When a new tumor was detected in Carolina's leg this fall, friends and family started holding fundraisers.
The DeHonds are looking to spend the donations, plus money they'd saved, on treatment in New York City, Mexico, Germany or elsewhere that could cost $50,000 or more. Insurance doesn't cover such experimental treatments."
With professional athletes being paid billions of dollars a year I refuse to believe that the average American doesn't have a few dollars to donate to a just cause.
If you would like to help try to save a life this season please donate:
By check:
Payable to: "Rochester Christian Reformed Church"
Write "Carolina's Fight! in the memo section.
Mail to: Rochester Christian Reformed Church
2750 Atlantic Ave.
Penfield, NY 14526
Attn: Carolina's Fight!
Online donations: Using PayPal
Via the “Send Money” feature, you can send donations
to CarolinasFight@rochester.rr.com
In-person donations: You may drop off cash
In-person donations: You may drop off cash
or check donations at Juan & Maria’s Empanada Stop
in the Public Market, Rochester, NY
More information can be found at Carolina's website: www.carolinasfightforlife.com
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